Tuesday, January 5, 2010

Overwhelmed ...? Understatement

I'm going to do my best here not to sound as beaten as I feel.

Sam's surgery is a week from Thursday.

We've all got a cough that has lasted for weeks, and I think carrying this cold, or swine flu, or whatever, has taken its toll on me.

I think I will have to take Sam back in to make sure the antibiotics kicked out his double ear infection; he seems to be feeling lousy again. They won't put him under unless he is totally healthy.

Not only that, we all have a ton of appointments before then. I have an EKG (echocardiogram) and an MRI scheduled for tomorrow. The MRI is to look at my head and see if the big fall I took a year ago Christmas Eve is the culprit of these intense stabbing headaches I've been dealing with for the past 13 months.

The EKG is because the doctor heard a heart murmur and said that this can sometimes cause aneurysms. Don't you just love to hear that word at a doctor's appointment? I doubt this is the case. He told me aneurysms can sometimes cause headaches. It was my understanding that aneurisms caused death.

On Thursday, I'm seeing a neurologist and my primary care physician to go over all of this.

On Friday, Maya is going for her MRI and EEG. This is because the Monday before the New Year, Maya came into the kitchen woozy at about 7:30. I was out with Miles, Jim was chopping peppers for me after his dentist appointment. I wasn't out there five minutes when Jim shouted to me that something was very wrong with Maya. I ran in, and found him holding her. She was drooling all over the place, to the point that it was bubbling out of her mouth, and she said she had a headache.

She asked, "Why am I talking funny?" in this thick slurred voice. I thought she might be having an allergic reaction, but couldn't figure out the drool. I looked at her tongue to see if it was swollen; it wasn't. She seemed dazed, but not completely out of it as if she were having a seizure. There was no fever ... just pale skin with some splotches on the right side. The whole right side of her face was drooping as if she'd had Novacaine.

I took her to the ER. I didn't call an ambulance because she seemed to be coming back. I actually let her eat first, probably not smart, but she kept saying she was hungry. She seemed OK. Not quite herself, but pretty good, actually jumping around at one point.

We got there at about 8:30 p.m., and they did a CAT scan and a urine test. I assume the latter was in case we had some terrible drug in the house, and they also mentioned blood pressure medication. But that didn't fit because her blood pressure was fine. They pricked her finger to check her blood sugar, which was fine, and thank God the CAT scan came back clear. I guess the initial concern was a brain tumor or stroke. We got home at nearly 2 a.m.

She was such a little trooper. She picked out a little toy for herself, something they do in the pediatric ER, and then asked if she could find one for Sam. She took her time looking for something he would really like instead of just finding something she wanted.

We got in with this great neurologist, and I patted myself on the back thinking it was my persistence, but quickly learned that Maya's pediatrician is in the same practice with the neurologist's daughter.

I liked him instantly. He was was confident, but not overly so, and he was very connected and great with kids.

I had thought he was leading me toward questions that related to her sensory issues, and began to wonder if there was something there, but he didn't think there was any spectrum behavior at all. I really didn't think so either. I'd had a little scare a while back, but now realize Maya deals with stress by sort of disconnecting. We'd had a bout of that before we moved, but then as soon as we were in the new house, she was back to herself.

The theories now are: It could have either been a seizure, a migraine, a fluke in her neurological wiring that would cause episodes like this one, or just a fluke that will never happen again. I'm really liking that last option.

Last night I had a dream that Sam was going for surgery and I couldn't stop crying. I was scaring him by bawling so much, and I couldn't make it stop. I stopped at a hot dog stand, and cried when the guy at the counter said, "I see your lips moving but I don't hear a sound!" I cried at Trader Joe's today when I saw a mom kiss her baby. I cried when I made the appointment for Maya today and I cried while hanging out with good friends last weekend, though granted that was after having champagne.

For the first time, I really feel like I'm cracking. I really just wish it wasn't so close to when Sam was going for his surgery on the right hip. He needs me to be strong, and I'm just hoping I can do that for him. Maya needs me to be strong, during her tests and during this surgery and recovery too, and Jim is counting on me to be strong. I'm here all day with the kids, I can't check out.

(Fortunately, a couple days later, I'm feeling more myself. Praying it lasts... Also, I don't have an aneurysm. Yay! Time to explore TMJ.)


6 comments:

  1. that's quite a horror story. you know what they say, what doesn't kill us makes us stronger. you and dave are going to be stronger than hercules when this is all over. my heart goes out to you.

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  2. Oh Reagan...my heart breaks for how much you are going through right now. Please call anytime you want to talk. If your doctor hasn't given you good medicene yet to treat the headaches, let's chat about that. No matter what is causing them (TMJ or whatever) you shouldn't have to suffer through them. :(

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  3. These next couple of weeks are going to be really hard for you Reagan - try to remind yourself about how you will feel when it is all complete and Ewan can actually race Iliana and possibly win- stay with the positive- speak as though it is so - before it is so -until it is so!
    Call a neighbor and ask them to give you an hour to yourself , I know you have great girlfriends who would do that for you - are your folks coming up for the surgery?

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  4. Reagan, you are an amazing woman and a fantastic Mom! Your family has more to deal with than anyone should however, I am a believer that God is a healer. Speak life to your concerns, take time for yourself and above all, know that with God NOTHING shall be impossible. I am praying for you and your family.

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  5. Hang in there cuz. I love you and you and yours will be in my prayers.
    Much love,
    Mindy

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  6. Dear Reagan and Dave - Loving thoughts and prayers are offered for you and your dear family. God's peace surround you and fill you. I am praying for healing and wholeness for each of you.
    Love you - Denise

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